This page outlines the work we are doing at the long-term conditions population board to support people who are living with long term conditions
Long-term conditions (LTCs) are illnesses that cannot be cured. They are health conditions that can impact a person’s life and may require ongoing care and support.
Long-term conditions are a major cause of poor quality of life in England. People in poorer areas are more likely to have long-term health conditions, and these conditions tend to be more severe than those experienced by people in less deprived areas. Deprivation also increases the likelihood of having more than one long-term condition at the same time. On average people in the most deprived areas of the population develop multiple long-term conditions 10 years earlier than those in the least deprived areas.
People from diverse ethnic groups are more likely than white British people to report limiting long-term illness and poor health, with those identifying as white Gypsy and Irish Traveller reporting the poorest health.
The Long-Term Conditions Population Board brings together partners from across Leeds to tackle long-term illness. This will help us tailor better care and support for individuals and their carers, design more joined-up and sustainable services and make better use of public resources.
The LTC population includes people aged 18 and over, not at end-of-life or frail, and with at least one diagnosed long-term condition (for example, heart disease, diabetes, arthritis, and asthma).
Outcomes for the long-term conditions population board
The ambition of our long-term conditions work in Leeds is that we will improve support for people managing LTCs and their carers. The following ambitions outline what we want to achieve as a board:
- I’m as healthy and as well as I can be with my long-term condition(s)
- People with a LTC return to and maintain their normal activities and lifestyle in ways that matter to them
- People with a LTC take an active role in managing their condition
These are our identified outcomes. By setting these clear goals, that are focused on how services impact the people they serve, the board is able to better track whether we’re really doing the right thing for the people using these services.
Making changes to services for long-term conditions
The ICB in Leeds is committed to achieving the best value for taxpayers’ money, and remaining accountable to the public, communities, and patients it serves. In line with this commitment, we are publishing our Quality and Equality Impact Assessments (QEIAs). These assessments describe how proposed changes to services or policies might affect people in Leeds. They also support the ICB in Leeds to identify opportunities to reduce the impact of any changes to services.
We are actively working to publish our Quality and Equality Impact Assessments on this site where possible, and to ensure that these documents meet accessibility and data protection standards. If you are unable to find an impact assessment relating to a specific service change, or require these documents in an alternative format, please contact [email protected]
Read our long-term condition QEIA
Insight review
We have worked with our partners to review the feedback (insight) we already have about people’s experience of long-term conditions and health and care services. This will help us understand what we already know. You can read the report below:
Download the long-term conditions insight report (Microsoft Word version)
Long-term conditions – Insight report (429KB)
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Public involvement workshop
We held a public involvement workshop to check the findings of our insight report, review our identified outcomes (as above), and discuss our approach to public involvement on the board.
Notes
Notes – Long-term conditions public involvement workshop (264KB)
In order to view PDF documents you will need Adobe PDF ReaderSlides
You can download the slides from the workshop below. Please note that these might not be fully accessible and we will aim to update these as soon as possible
Download the long-term conditions public involvement workshop slides (PowerPoint)
Long-term conditions – public involvement workshop slides (1MB)
In order to view PDF documents you will need Adobe PDF Reader
People’s experience of long-term condition services
We always want to hear about your experiences of using services, it helps us know what’s working, and where things could be improved.
There are a number of ways you can tell us about your experiences:
‘How does it feel for me?’ project by Healthwatch Leeds
Get involved in sharing your experiences by video or written testimony. Your feedback will be shared with senior decision-makers in Leeds. See people’s experiences and find out more by visiting: https://healthwatchleeds.co.uk/our-work/how-does-it-feel-for-me/
Share your story on Care Opinion
Care Opinion is an independent place where you can share your experience of health or care services, and help make them better for everyone. You can share your own story on Care Opinion. Say what was good and what could have been better.
Find out more and tell your story